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| Definition: |
A term referring to a group of conditions that feature cystic bone growth which may result from abnormal bone development. See also McCune-Albright syndrome.
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| Alternative Names: |
Inflammatory fibrous hyperplasia; Idiopathic fibrous hyperplasia
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| Causes, incidence, and risk factors: |
| The condition occurs in childhood with bone lesions, skin pigmentations, and endocrine abnormalities. The bone lesions may stop at puberty. |
| Treatment: |
| There is no specific treatment for these disorders. Observation and treatment of bone fractures or deformities take place as indicated. Observation and screening for the development of endocrine disorders are indicated. |
| Expectations (prognosis): |
| There is an increase in endocrine disorders in some types of fibrous dysplasia. There is an increased incidence of sudden death caused by heart arrhythmias. |
| Calling your health care provider: |
| Call your health care provider if symptoms of this condition are present (to rule out other causes of the symptoms). |
| Prevention: |
| There is no prevention for the complete disorder. Preventing specific complications, such as circumstances that may lead to fractured bones, may help limit the ultimate severity of this group of disorders. |
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Review Date: 12/3/2001
Reviewed By: David G. Brooks, M.D., Ph.D., Division of Medical Genetics, University of Pennsylvania Medical Center, Philadelphia, PA. Review provided by VeriMed Healthcare Network.
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